Patient Voices

Retinal diseases can be life altering.
The experiences of those impacted by conditions such as Stargardt disease inspire us every day.

A variety of resources are available to support patients and families impacted by vision loss.

Jack

An entrepreneur and mechanical engineer with Stargardt disease

Sam

A successful podcast host living with Stargardt disease

Renee and Michael

Parents of Miles, a young musician living with Stargardt disease

Miles

A talented young musician living with Stargardt disease

Contact Us

We would like to hear from you. Patients and family members can reach us by email at patientadvocacy@alkeuspharma.com.